randi

atheist, vegetarian, neurofibromatosis
i like animals, art, and spooky things.
#foreveralone


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i’m short and i’m chubby and my socks don’t match.
my legs are fat and my feet are tiny,
they do not compliment each other whatsoever.
i don’t have a thigh gap and i never will and i’m ok with that.
my meggers made this for me. we watch way too much supernatural.
side note: this was NOT meant to be a boob shot…
no cares
my favorite shirt, and got my 5/8 plugs in today.
i got all cute because i was supposed to hang out with megan but “things” happened and ruined our plans. -_-
our besties necklaces(they have magnets in them to we can stick them together)
made my hershe can make absolutely ANYTHING. no seriously.if you want something custom just ask and i guarantee she can make it
here, have my face. it’s gross and ugly but it’s the only one i’ve got.
im gonna start telling people i survived a chestburster XD
oh my glob, i hate my big belly
no makeups.
my nose is sooo big. i hate it. x_xi look like doug funny.
Best shirt evah!!
I ♥ my spikey cuff.
posting this again because i feel like it okie? maybe tomorrow ill take a new photo for a side by side comparison of how ive healed so far.
also… why wont this show up when i type neurofibromatosis in search?
fuuuuuu
i hate how my eyes are always 2 different shapes in photos

my incision: 16 staples, about 5 inches long.
i had some MRI’s done back in early september. on october 4th i had an appointment with my doctor to find out the results, which was that i had a tumor behind my intestines that had to come out, he said it had to come out now because this type of tumor like to turn into cancer if left alone.
well, we thought there was only going to be 1 tumor but they found 3. the biggest one, which is the one that showed up in the MRI was about 2 cm, the other two were smaller and they didn’t show up in the MRI. the doctors didn’t know they were there till they’d cut me open. the tumors were attached to my intestines, so they had to cut off parts of my intestines and sew them back together to make sure they got all of the tumor.
you can see the scar from my last surgery on the lower right side (which is actually my left) of my belly. this scar is from another tumor removal surgery done 3 years ago by the same doctor. its huge and full of scar tissue which is why its all gross and saggy and misshapen, i think its because he just used some sort of glue to hold it together instead of stitches or staples. anyway, its where i’ve been getting all my shots these past few days because the nerves there are dead and i cant feet it, so its full of red spots from the needle pokes.
speaking of needle pokes, i lost count of how many times these people have had to redo my IV because they missed/couldn’t find the vein the first few times. also, the doctor wanted me to have an epidural because of how intense the pain would be, and my scoliosis made getting that done extra painful for me and extra difficult for the nurses. i am a fucking pincushion. more fun; i told everyone that i’m allergic to betadine and they used it on me anyway, and apparently i am also allergic to the soap they gave my to use last night for my bed bath, and anywhere tape has touched me is red and sore.
this was probably my 10th surgery, not exaggerating.
i had the surgery on halloween morning, and because originally everyone thought there was only one tumor i was supposed to get to go home the next day, but when they did the surgery and found that there were 2 more and that they were attached, it became a more serious surgery than everyone expected. it is now saturday night, almost sunday and i am still in the hospital.
i was in so much pain today because they switched me off the epidural and on to pills last night. i woke up at 3am from the pain. it has yet to subside. i don’t see myself going home any time soon and staying in this hospital bed is making my muscles get all tight and sore. and i dont know if its from the meds or from the pain but i cat see straight at all. today has been the shittest day ever.
there was no way of getting out of this surgery because the doctor said the type of tumor he found in the MRI likes to turn to cancer if its left alone, so they took my tumors to a lab to see if they’re malignant or not, i haven’t gotten any results on that yet. i really wanted to see the tumor though. :P
i think once i’m better (like in a few weeks) ill make a page about my neurofibromatosis story. but for now i just want to sleep until its time to go home.
this is the first time i’ve ever had a really serious surgery, i’d always just been outpatient before. but i guess i’m gonna have to get used to it.
i have neurofibromatosis, and this is my life.

(i almost didn’t post this picture because i hate my fat frumpy body.)
my fave pajama pants
old picture
arm fat ftl